Monday 16 July 2007
oh my god
Today i went to work i was so tired when i got home then i got a phone call from emily saying channel 5 wanted me from the case study on the opt in or out system for organ donation so i said yes give them my number so 5 min later i get another phone call its channel 5 there coming at 3.30 to do a pre record so half three arrives and they turn up so we sit down and do the interveiw and the reporter said i was an amazing speaker which i laughed at so we finnised the interveiw and doing some intro stuff and i put on my vest the interveiwer was amazed so i let her put it on it was the funneist thing ever so anyway im going to go and sleep xxx
Sunday 15 July 2007
woohoo
I'm feeling much better today i played football went to see my grandad and could breathe so im happy at the moment its thunder and lightning so im going to go and hide love to u all xxx
Saturday 14 July 2007
today
Today was crap my chest is annoying me i was constanly tight chested making it hard to breathe all day plus my sats was up and down all over the place,but i thought i had something to look forward to i was going to see harry potter but when we arrived at the cinema we found out the digital projector was broken so the showing was canceled i was not amused so we went food shopping instead oh the joy (not) i had to have my oxygen on so most of the kiddies running round where looking at me as if i was a monster. So anyway my rant over hopefully tomorrow is better.x
Friday 13 July 2007
Me so far
my name is jessica wales and this is my life
I was born on the 19th of March 1989 to my mum jacquline susan wales and my dad Harry william wales my mum was 26 years old and my dad was 34 years old, i was born at 5.46Am and everything appered normaloh how wrong everyone was.Everything was nomal till i was about 4 months when i devoloped phumoneia and almost died, after that i was finally dignosed with cystic fibrosis which is a life threatening condition and from then on i was in and out of hospitals reciving treatment for sevral different infections for a number of years till everything calmed down for a while.Now we can skip a couple of years till the age of 4 when on the 2nd of febuary 1994 my Nan died from lukimeia i was devesated and still miss and love her so much to this day, but later that year wheni was 5 my dear little brother was born and i loved him from the moment i saw him. At this time i had stopped needing to go into hospital because i was quite well till the aged of 7 when i got MRSA and had to have a very strong drug which knocked all my bugs out. After that i was ok till 11 when i started 3 monthly introvinas antibiotics and had a porta cath fitted which is a little devise which is under the skin and you can use it for iv's. althogh i had a very strict regiem with medication nebulisers physio therepy i lead i a normal childhood and didnt let it rule my life i was able to go horse ridding and go to brownies and never had any more absance from school than my friends.In 2001 i was dignosed with diabetes and started insuline, everything seemed fine and i continued three monthly ivs untill in 2005 i was told i might need a transplant at that moment i looked out of the window and there was a little bird sitting a tree outside as it flew away i wished just for a second that i could fly away aswell to get away from all of this but then i looked back at the doctor and said ok i'll go for assessment, and was sent for assessment but befor i went for assessment i had a peg fitted whichi recive food over night through i also by this time needed oxygen over night, in july i went for my assessmentand was told i needed a transplant and went straight on the list now it was just a waiting game,everything from then seemed crappy untill i got over the fact that not many people get there transplants due to waiting lists being so longbecause there are not enough people signed on to the organ donor register. so anyway its been 2 years now and only one false alarm im getting kind of tired of it now and starting towant to give up some days but i carry on solidering and pray that it comes my frends and family keep me strong so thats my life so far who knows what the future holds......MY FALSE ALARM Its 2 o'clock in the morning on the 27th of april 2007 i have just been called for transplant im so scared it has just hit home i just had the sudden thought OMG someone is diying at this very moment so i can potentionely live.Mum is worring like hell and so is dad they are trying to hide it but i no they are. Grandad started crying which i didnt like at allnathan is at home with grandad. so we arried at harefield hospital at 4'o clock and i had blood taken to check the amont of infectioni had which came back ok slightly raised but within the boundrys that the like i then had my shower with disinfectent and settled down and waited for news i even managed to get some sleep. Then at 8 am i was told the news that the transplant wasnt going ahead i was so upset and took me a day or so just to get my head around it a month on and im still waitng for that call that will save my life. So please help sign the organ donor register please give the gift of life after your death. There are 7,000 people waiting for transplant and this year 450 people will die waiting just think how would you feel if a loved one was dying on the list just waiting and hoping for a new chance at life. After a recent trip to the hospital my physiotherapist managed to to get hill.rom to kindly loan me a vest for a few weeks trial. well its a great help and my physio time is cut in half, and a very kind lady has paid for it for me.
I was born on the 19th of March 1989 to my mum jacquline susan wales and my dad Harry william wales my mum was 26 years old and my dad was 34 years old, i was born at 5.46Am and everything appered normaloh how wrong everyone was.Everything was nomal till i was about 4 months when i devoloped phumoneia and almost died, after that i was finally dignosed with cystic fibrosis which is a life threatening condition and from then on i was in and out of hospitals reciving treatment for sevral different infections for a number of years till everything calmed down for a while.Now we can skip a couple of years till the age of 4 when on the 2nd of febuary 1994 my Nan died from lukimeia i was devesated and still miss and love her so much to this day, but later that year wheni was 5 my dear little brother was born and i loved him from the moment i saw him. At this time i had stopped needing to go into hospital because i was quite well till the aged of 7 when i got MRSA and had to have a very strong drug which knocked all my bugs out. After that i was ok till 11 when i started 3 monthly introvinas antibiotics and had a porta cath fitted which is a little devise which is under the skin and you can use it for iv's. althogh i had a very strict regiem with medication nebulisers physio therepy i lead i a normal childhood and didnt let it rule my life i was able to go horse ridding and go to brownies and never had any more absance from school than my friends.In 2001 i was dignosed with diabetes and started insuline, everything seemed fine and i continued three monthly ivs untill in 2005 i was told i might need a transplant at that moment i looked out of the window and there was a little bird sitting a tree outside as it flew away i wished just for a second that i could fly away aswell to get away from all of this but then i looked back at the doctor and said ok i'll go for assessment, and was sent for assessment but befor i went for assessment i had a peg fitted whichi recive food over night through i also by this time needed oxygen over night, in july i went for my assessmentand was told i needed a transplant and went straight on the list now it was just a waiting game,everything from then seemed crappy untill i got over the fact that not many people get there transplants due to waiting lists being so longbecause there are not enough people signed on to the organ donor register. so anyway its been 2 years now and only one false alarm im getting kind of tired of it now and starting towant to give up some days but i carry on solidering and pray that it comes my frends and family keep me strong so thats my life so far who knows what the future holds......MY FALSE ALARM Its 2 o'clock in the morning on the 27th of april 2007 i have just been called for transplant im so scared it has just hit home i just had the sudden thought OMG someone is diying at this very moment so i can potentionely live.Mum is worring like hell and so is dad they are trying to hide it but i no they are. Grandad started crying which i didnt like at allnathan is at home with grandad. so we arried at harefield hospital at 4'o clock and i had blood taken to check the amont of infectioni had which came back ok slightly raised but within the boundrys that the like i then had my shower with disinfectent and settled down and waited for news i even managed to get some sleep. Then at 8 am i was told the news that the transplant wasnt going ahead i was so upset and took me a day or so just to get my head around it a month on and im still waitng for that call that will save my life. So please help sign the organ donor register please give the gift of life after your death. There are 7,000 people waiting for transplant and this year 450 people will die waiting just think how would you feel if a loved one was dying on the list just waiting and hoping for a new chance at life. After a recent trip to the hospital my physiotherapist managed to to get hill.rom to kindly loan me a vest for a few weeks trial. well its a great help and my physio time is cut in half, and a very kind lady has paid for it for me.
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